Riley MRI

Riley MRI
Riley's First Picture

Monday, April 11, 2011

Progress and Fun

Hi All,

I cannot believe that it has been 7 weeks since Riley was born, nor can I believe that  its been almost 10 weeks since I "moved" out to Boston.  Holy Cow!  We had some interesting things happen in the last week so here it goes:


Riley had a very rough start to the week.  She was just not herself and would fuss and cry at the drop of a hat.  She was refluxing pretty bad so she was given Xantac to take away the burn of the acid and erythromycin to help keep her digestive system moving feeds through at a quicker rate.  Additionally, Riley was weaned off the last of her Ativan at the beginning of last week and was also going through withdrawal at the same time as her refluxing.  She was given a "rescue dose" of the Ativan and after all the meds kicked in, she was back to her old self.

Grandma Trask, Uncle Jon, Uncle Rob, and Auntie Dijana stopped by to visit on Tuesday and we all had a nice dinner at Au Bon Pain.  Uncle Jon loved his veggie burger with guacamole and feta (he actually wanted a hamburger with cheese and mayo).



We had a very lazy day on Wednesday and slept in in the morning.  I brought Riley into my chair bed and we snuggled till 9!  It was totally sweet!



Later on that day we did some tummy time on the boppy pillow and Riley did so well picking her head up.  It is so exciting to see the normal movement stages happening with her.



Thursday rolled around and we went back downstairs for another swallow study.  We had success!  Riley was able to take the thickened milk without aspirating!  She still aspirates on the regular milk, but we will take what we can get. 

Friday was a big day around here.  It was the home opener for the Red Sox.  Riley got her picture taken with a baseball bat signed by the team (sorry grandmas and grandpas).  Don't worry, we will teach her all about the proper team to root for as she grows up, The Yankees (I'm sure we just lost alot of blog readers after that statement).  One of the players donated money to the hospital for all 5 inpatient floors to have a party including nachos, pigs in a blanket, soft pretzels, and lots of ice cream.  What an awesome gesture!

On a side note, what is more awkward than being alone in an elevator with two grown men dressed as clowns?  Being alone in an elevator with two grown men dressed as clowns that whip out a mini guitar and start singing a love song (Happy Together) to you.  Oh yes, very awkward.  I love the clown care for the kids, but I have to admit I was pretty weirded out by the whole thing.

Chase and Brian headed in as well on Friday and we spent the afternoon and evening at the hospital.  Chase learned to say elevator and showed of his new skills to everyone.  We had a great weekend to follow and got in lots of play time with the kids that we miss during the week (Brian & Riley and Me & Chase).  Chase and I even found a park during our walk.  He really enjoyed the swings but the moment I took out the camera, he was all done.



Daddy and Chase left yesterday, and Riley and I got some use out of the bouncy chair they brought out for us.  I think she enjoyed it...



In this new week, we will be working to figure out if Riley will need the Nissen surgery (scheduled for may 2nd) by feeding her more by mouth and seeing if she can keep it down.  Cross your fingers for good results!!

Have a great week!


5 comments:

  1. We'll keep our fingers crossed for Riley! On another note, it sounds like you all had a great weekend all around! The Red Sox can't be that bad if one of them pitched in for a party! ;) Very cute pictures!

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  2. I LOVE YOU GUYS!!! Sending lots of hugs and kisses :)

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  3. She's adorable! Can't wait to get out and see her again.

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  4. Way to go Riley! We are all rooting for you. It sounds like you are making great progress and we are all so excited for you. Lifting your head during tummy time...I am impressed. You have come so far my little friend!
    -Meg, Josh, Max and the rest of Team Max!

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  5. Riley,
    Those Boston Boys do such wonderful things at CHB! Its okay if you decide you like them better than those men in striped suits.

    I can't wait to play with you again.

    Love,

    Nova

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