10/28/2010
Hi all,
This is an email we wish we didn't have to send. Last Tuesday we went for a routine ultrasound and found out we were having a baby girl. We also found out that there was a complication with the pregnancy. Riley has been diagnosed as having CDH (congenital diaphragmatic hernia). We went for a high level ultrasound today to confirm this diagnosis.
While many of you have probably never heard of CDH it is a birth defect that occurs at the same rate as spina bifida or other well know defects (about 1 in 2500). There is a hole in her diaphragm through which her organs can travel through into the chest cavity. The presence of the organs in the cavity impedes lung growth and may prevent her from breathing when she is born.
We have done our initial testing at Baystate but are being referred to Boston for more care. The rate of survival in CDH babies is about 50% but Boston Children's Hospital is about 90% so we are hopeful.
We are doing well at this point and will be tackling this head on without hesitation. What we do know is that we cannot do this alone and are asking you to please keep us in your prayers in the coming weeks and months. We will keep you all updated when possible, but please do not post on our Facebook wall regarding this. Thank you in advance for all of your love and support.
All our love,
Brian, Sandy, and Chase
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