I know it has been a couple days since we updated so here we go...
This weekend went by so quickly. I came down with the stomach flu on Saturday and by Sunday I was unable to sit up without feeling like collapsing. Thankfully I was able to go over to Brighams to be pumped full of three bags of fluid.
Riley has been doing well being weaned off the vent. We are currently on a PIP of 13 and going down to 12 today. We need to hit 10 to begin extubation talks.
Feeding is not going as well as we had hoped. Riley has thrown up about once a day since getting to full feeds. There are several reasons this could be happening including the fact that she prefers to lay on her tummy which causes pressure, she could be allergic to a med, or her stomach is just sensitive right now. Brian and I mentioned that we were afraid of her aspirating during this especially if she is on her back. Today they are going to try moving he tube down so the food goes into the intestines instead of the stomach. If it doesnt go easily (because her organs could still be jumbled) they will reevaluate.We had an echo yesterday that shows Riley has alot of pulmonary hypertension and she has been put on soldenophil to try to dilate the vessels. This should hopefully help us wean her off the nitric she is currently on. We are being closely followed by cardiology so we are confident it is under control.
Brian went home this week to be with Chase. They were sitting on the couch last night and Chase pointed to a picture on he wall and said mama. He pointed to the next one and said dada. He then turned around, pointed at Brian and said dada with a huge smile on his face. Someone is happy to have his dada home!
Also, we are ok with visitors if anyone wants to make the trip. Please just let us know in advance. Hopefully you all have a great week!
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