If Dr. Wilson is Happy, We are Happy

Good Sunday Morning!

Riley had a good night last night.  After surgery on Thursday, her vent pressure levels were raised, and her sats we not coming back as good as we hoped they would be.  Dr. Wilson, the surgeon we had originally met for her case back in November came back on Friday and started her on a track to decrease pressure levels in the hopes of getting her numbers back to good.

We received the good news this morning that we are almost back to where we started before surgery.  They have decided to leave everything where it is and to give Riley a "break" today before starting anything new so that we have some baseline levels set.  When the rounds were over, Dr. Wilson said "I'm smiling, and I don't smile."  Those were the best words we have heard all week!

Riley was graced yesterday with a visit from Grandma and Grandpa Coombs.  They brought lots of new outfits and the nurses let us put on the one below for a few hours:

She is just as cute as a button, and all the nurses headed over to see the talk of the ICU yesterday.  On a side note, Riley has had a tremor in her left arm and we are not sure what is causing it.  She is having an EEG done wich started Friday night at around midnight.  They should be finishing today.  They gave her a stocking cap to cover all the wires on her head.

Also, we feel so lucky that we found a website dedicated to CDH babies while I was pregnant.  There is not much information out there about CDH, so this website was very important to us (www.cdhsupport.com).  They give all expecting parents of CDH babies a care package filled with items donated in memory or in honor of a CDH baby.  In the picture below, Riley is rocking her new slippers, and snuggling with a bear from the package.  There were many other things included such as a puzzle book to keep us busy, hand sanitizer, a onesie, a blanket and many other things.  My mom will be planning a "baby shower" at some point this summer to collect items to donate for these boxes.  More news on that will follow.

We hope you all have a great week going forward.  Thank you so much for the supportive messages and prayers.  We truly believe that it is helping our little girl stay strong and make it through this time.